A Mother's Message

I'm a mum fighting for my child's future.

My little girl, Sasha, has a rare genetic condition that causes childhood dementia. Every day it takes more of her words, her abilities and her independence. I am watching time slip away for my child.

We have a personalised genetic therapy – a medicine designed just for her that could give her a future. The last stages of research are happening and Sasha’s cure will be ready for safety testing. The last stage, the most critical part and the most expensive and the sole purpose of $SASHA is to fund this. The only thing standing between Sasha and treatment is completing the final safety testing.

If we cannot raise the money in time, she will grow into adulthood without the chance to live the life she deserves. There may not be another opportunity after this.

This coin exists for one reason only. To fund that safety work and give my daughter her chance at a future.

If you've ever wanted to be part of something that truly matters, please consider standing with us.

For Sasha. Now.

A Mother's Message

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Sasha’s Story